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| Our little Superman, prepped for his big day |
Decannulation was a huge success! Zeke rocked it like he has everything else, which means he turned it up to eleven. When you need that extra boost, you gotta take it to eleven. The day wasn't quite as full of pomp and circumstance as I expected, but I will take it. After first scoping his airway to make sure there were no obstructions, we got the go ahead to "make it so." Jenny did the honors and pulled the trach out with expert care. Were there fireworks? Were there the cheers of adoring crowds? No, there was not. Zeke coughed and then went back to Mickey Mouse, seeming not to notice.
Zeke had to spend the night in the hospital for monitoring, but did amazingly well every step of the way. He still needs a little oxygen at night and during naps, but that will hopefully disappear over time.
The success of decannulation also means that it is kidney time! The transplant team wasted little time in picking a date. Are you ready? On July 28th, Ezekiel will get a new kidney. That's right, they will take a kidney out of his Aunt Michelle and slap it into his abdominal cavity. This still seems like black magic to my primitive caveman brain.
Transplant will be such an amazing step for his health, I really don't know what else to say. It feels like this is the end of his journey. After all he's been through, I wish that were true. But let's not forget that his path from here is much brighter, and less covered in puke. I dread waiting the 5 hours for him to emerge from surgery, but I wiggle with excitement at the thought of seeing him on the other side. Something tells me you do too.
A sincere "Thank you" to all of you for your continued support. It means the world to Zeke and his Mom... and his Dad.
Caleb
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| Our first family shot sans trach |
Zeke had to spend the night in the hospital for monitoring, but did amazingly well every step of the way. He still needs a little oxygen at night and during naps, but that will hopefully disappear over time.
The success of decannulation also means that it is kidney time! The transplant team wasted little time in picking a date. Are you ready? On July 28th, Ezekiel will get a new kidney. That's right, they will take a kidney out of his Aunt Michelle and slap it into his abdominal cavity. This still seems like black magic to my primitive caveman brain.
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| "Do ya mean it, Pa? I can have a kidney, for true?" |
Transplant will be such an amazing step for his health, I really don't know what else to say. It feels like this is the end of his journey. After all he's been through, I wish that were true. But let's not forget that his path from here is much brighter, and less covered in puke. I dread waiting the 5 hours for him to emerge from surgery, but I wiggle with excitement at the thought of seeing him on the other side. Something tells me you do too.
A sincere "Thank you" to all of you for your continued support. It means the world to Zeke and his Mom... and his Dad.
